Fighting sarcoidosis as well as other rare diseases.
Episodes
Monday Mar 23, 2020
Monday Mar 23, 2020
NOTE: This podcast was recorded in the early days of the caronavirus pandemic. I made several references to the status of the precautions at the time of the recording. They may seem outdated by the time you listen to this. I already know that The Foundation for Sarcoidosis Research has postponed its Chicago summit originally scheduled for April 3-5 to August 30 - September 1. Here is the link. https://www.stopsarcoidosis.org/rescheduled-chicago-patient-summit/
This podcast is an introduction to the Foundation for Sarcoidosis Research, which is fighting for funding to support research to beat sarcoidosis. I interviewed Maggie Hudson, who is the communications manager for the Foundation. She is extremely knowledgeable about the various aspects of the fight against the disease. I hope you will enjoy learning more about FSR and the potential for an eventual cure.
Please remember the Sarc Fighter podcast is uploaded every other Monday at 6 a.m. But, during the month of April, sarcoidosis awareness month, I will be releasing an episode EVERY Monday profiling four people who are fighting sarc every day.
Here is the link to the Foundation for Sarcoidosis Research: https://www.stopsarcoidosis.org/
World Association of Sarcoidosis and Other Granulomatous Disorders https://www.wasog.org/
More on Maggie Hudson: https://www.stopsarcoidosis.org/about/staff/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me sarcfighter@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Are you a cyclist?
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Monday Mar 09, 2020
Monday Mar 09, 2020
Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine. "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast. Frank was one a runner. A good one, turning a marathon time of 2:30 and running under a 4-minute mile. Now, he walks with a cane. Despite the setbacks, Frank Rivera is one of the loudest voices in the fight against Sarcoidosis. He organizes a walk on Long Island. He's just published a book. He even worked to get a billboard in New York's Times Square to fight Sarcoidosis. I hope you enjoy our talk recorded in February of 2020 at Chevy Chase, Maryland during a meeting of advocates for the Foundation for Sarcoidosis Research.
Frank's Walk https://www.ticketor.com/sarcoidosisofli/event/6th-annual-sarcoidosis-of-long-island-awareness-walk-187357
Frank's website, Sarcoidosis of Long Island https://www.sarcoidosisofli.org/
Other mentions from the Podcast
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me sarcfighter@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Friday Feb 21, 2020
Friday Feb 21, 2020
In this Episode of the Sarc Fighter Podcast, I interview Dr. Simon Hart of the Hull York Medical School in the U.K. Dr, Hart is one of the world's leading authorities on sarcoidosis. I asked him about the troubling aspects of sarcoidosis -- like, why can't we find a cause or a cure, and why is it so difficult to control.
More About Dr. Simon Hart https://www.hyms.ac.uk/about/people/simon-hart
My Sarcoidosis story on WSLS 10 TV https://www.youtube.com/watch?v=qyT3OfR60B4
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR summits 2020 https://www.stopsarcoidosis.org/patient-summits/
My blog about Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
E-mail me carlinagency@gmail.com
Saturday Feb 08, 2020
Saturday Feb 08, 2020
John Carlin launches the Sarc Fighter podcast, by sharing the story of how sarcoidosis has taken over his life -- and how he is fighting back. From the drugs that worked to those that didn't - and the ones that made his life miserable, John shares the trials and tribulations that people with sarcoidosis face every day.
John's bike blog including a series of posts on cycling with sarcoidosis. www.carlinthecyclist.com
The Foundation for Saroidosis Research https://www.stopsarcoidosis.org/
Contribute to John's KISS account -- Kick in to Stop Sarcoidosis https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis
Upcoming Summits for the Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/patient-summits/
Sunday Jan 19, 2020