Fighting sarcoidosis as well as other rare diseases.
Episodes
Monday Jun 19, 2023
Monday Jun 19, 2023
Matthew Campbell was trying to come back from a couple years of being out of shape, but his body seemed off somehow. His normal pep on the basketball court just wasn't there. What WAS there was sarcoidosis. Listen in as Matthew shares the story of how he gradually realized he was fighting way more than his fitness.
Show notes:
More on aTyr Pharma: https://atyrpharma.com/
Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq
Back episodes from folks at the gala:
Erica Courtenay Mann: https://podcasts.apple.com/ca/podcast/episode-55-erica-courtenay-mann-has-sarcoidosis-on/id1499587273?i=1000551017276
Warren Robinson: https://beatsarc.podbean.com/e/episode-50-warren-robinson-s-father-died-suddenly-and-the-family-struggled-to-find-out-why/
Calvin Harris: https://www.youtube.com/watch?v=X1BJS2VMJSY
Royce's Cycle4Sarc page: https://stopsarcoidosis.rallybound.org/cycle4sarc?tab=Dashboard&fbclid=PAAaa9zWEjpGVyS1Q5Swa8mm5JT0t7JH13dfxVxdW1QlBMmbiRmc00Ol-uu-c
Royce Robertsons original interview: https://beatsarc.podbean.com/e/episode-79a-royce-robertson-is-fighting-sarcoidosis-from-the-seat-of-his-bike/
Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/
Become a community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/
MORE FROM JOHN
John Carlin's Outdoors: https://www.wsls.com/topic/John_Carlin%27s_Outdoors/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!
If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
email Royce Robertson roycelrobertson@gmail.com
Comments (2)
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Hi Karen. Thank you for reaching out. I’m so sorry to hear that. Your sarcoidosis has become more chronic. I’m glad you have found the podcast and that you find it helpful. Keep looking for that doctor. They are out there if you have any questions feel free to contact me at my email address, Carlinagency@gmail.com
Thursday Aug 03, 2023
Thank you for making and posting Sarcoidosis awareness videos. I also live in Richmond Virginia. Been fighting sarcoid since 2014 diagnosed at VCU Dermatology confirmed with biopsy. Only symptom until 2016 Pulmonary developed. Since then it has become very chronic. My difficulties are trying to find competent sarcoid doctors. On my 5 PCP in search of another more proactive Dr with better sarcoid understanding of treatment. I’m on FB, where I found this podcast. Thank you Mike!
Monday Jul 24, 2023
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