Fighting sarcoidosis as well as other rare diseases.

Episode 3 Patient Frank Rivera bares his soul.

March 9, 2020

Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine.  "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast.  Frank was one a runner.  A good one, turning a marathon time of 2:30 and running under a 4-minute mile.  Now, he walks with a cane.  Despite the setbacks, Frank Rivera is one of the loudest voices in the fight against Sarcoidosis.  He organizes a walk on Long Island.  He's just published a book.  He even worked to get a billboard in New York's Times Square to fight Sarcoidosis.  I hope you enjoy our talk recorded in February of 2020 at Chevy Chase, Maryland during a meeting of advocates for the Foundation for Sarcoidosis Research.

Frank's Walk

Frank's website, Sarcoidosis of Long Island

Buy Frank's book:

Other mentions from the Podcast

Cycling with Sarcoidosis

The Foundation for Sarcoidosis Research

FSR Summits 2020

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR

My story on Television

email me

Sarc Fighter Facebook Page