Episode 73 | FSR is looking for a few good volunteers. Maybe you.

The Foundation for Sarcoidosis Research is looking for people who want to help in the fight.  In 2022 FSR announced the Global Sarcoidosis Clinic Alliance - a member program of clinics, hospitals, and individual providers committed to finding a cure and offering evidence-based, patient-centric care for those living with sarcoidosis.  These providers, such as the Cleveland Clinic, are among the top care centers for Sarcoidosis in the United States.  

FSR is looking for the right people to lead support groups and other patient-focused activities at each center.  In this episode of the Sarc Fighter podcast, Mindy Buchanan of FSR and Rhonda Jenkins of the Cleveland Clinic join me to talk about the types of people they are searching for and how to get more information. 

Show Notes

Kinevant Clinical Trial information: https://bit.ly/3DaVsR6

More about Kinevant: https://kinevant.com/about-us/

Help FSR further its mission by becoming an Alliance Volunteer:  www.stopsarcoidosis.org/gsca-leaders/

Become s community outreach leader: https://www.stopsarcoidosis.org/gsca-leaders/

Webinar on becoming an Alliance Volunteer: https://www.eventbrite.com/e/becoming-an-fsr-global-sarcoidosis-clinic-alliance-volunteer-leader-tickets-445588847237  

 

FSR Webpage on Financial planning for life with Sarc:  https://www.stopsarcoidosis.org/financial-assistance-support-for-those-living-with-sarcoidosis/

#Makeitvisible https://www.stopsarcoidosis.org/fsr-updates-and-publications/

The New FSR Initiative

https://www.stopsarcoidosis.org/foundation-for-sarcoidosis-research-launches-groundbreaking-global-rare-disease-initiative/

Nourish by Lindsey: https://www.nourishbylindsey.com/

 

MORE FROM JOHN

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

Watch the Prednisone Town Hall on YouTube https://youtu.be/dNwbcBIyQhE

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast?  It's also an FSR fundraiser!

If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account.  (Kick In to Stop Sarcoidosis)  100-percent of the money goes to the Foundation.  https://stopsarcoidosis.rallybound.org/MarkSteier

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  carlinagency@gmail.com