Fighting sarcoidosis as well as other rare diseases.
Episodes
Monday Jul 06, 2020
Monday Jul 06, 2020
Mark Steier is a talented musician. His battle with sarcoidosis has dominated his life to the point he wrote and performed a song, called Zombie to describe the battle.
One stanza goes as follows: "Learn to suffer You’ll feel pain someday And learn endurance - Your strength will fade away
Dead man walking Trying to keep up the pace
Dead man walking
Counting down the days."
I can tell you that Mark's haunting melody is catchy -- but more than that it resonated with me -- as I'm sure it will with you. In this episode of the Sarc Fighter Podcast, Mark describes his fight with sarc and describes the feelings and emotions that led him to the lyrics. We will listen to the song in pieces, and then at the end -- in its entirety.
More than that, Mark is donating the proceeds from Zombie to the Foundation for Sarcoidosis Research.
If you would like to donate in honor of his efforts, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent to the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier
You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
May I suggest that you make a donation and also share the links above on your social media? The more people who know about Sarcoidosis, the easier it will be to raise funds to fight the disease. Zombie takes our message and puts it in easily consumable terms anyone can understand and relate to.
I've talked to so many people already, and I feel like some portion of each person's story is represented in this song. For some reason, I just think this song is important.
Meanwhile, if you would like to contact me all of my info is below.
The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/
FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Sarc Fighter Facebook Page https://www.facebook.com/SarcFighter/
Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
Comments (2)
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This is one of your best episodes. I also love the ones with doctors. Could you do one on where to get treatment when all of your “team” tend to disregard your concerns, which are very real.
Saturday Jul 25, 2020
I really enjoyed the interview! Thanks!
Monday Jul 06, 2020
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