Fighting sarcoidosis as well as other rare diseases.

April 6, 2020

Episode 5 Chasta Posey tells her Sarcoidosis story from blindness to finding a path to positivity

Chasta Posey tells her sarcoidosis story in this episode of the Sarc Fighter podcast.

Chasta has a compelling story to tell about how sarcoidosis attacked her body and her life at a very young age.  She has dealt with blindness, kidney issues, and breathing difficulties just to name a few.  Yet through it all, she remains soooo positive. 

Chasta is an advocate for the Foundation for Sarcoidosis Research.

Find her on Facebook at https://www.facebook.com/chasta.posey

Chasta's Linked In https://www.linkedin.com/in/chasta-posey-03990a80/

Chasta's Instagram https://www.instagram.com/chasta_lafaith/

Caronavirus Covid-19 update for Sarcoidosis patients https://www.stopsarcoidosis.org/coronavirus/

CNN Story on U.S. Open Tennis Courts setting up to fight Covid-19  https://www.cnn.com/2020/03/31/us/us-open-coronavirus-hospital/index.html

Other links associated with the Sarc Fighter Podcast:

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

FSR Summits 2020  https://www.stopsarcoidosis.org/patient-summits/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  sarcfighter@gmail.com

Sarc Fighter Facebook Page  https://www.facebook.com/SarcFighter/

March 23, 2020

Episode 4 Maggie Hudson of FSR on how we are fighting sarcoidosis

NOTE: This podcast was recorded in the early days of the caronavirus pandemic.  I made several references to the status of the precautions at the time of the recording.  They may seem outdated by the time you listen to this.  I already know that The Foundation for Sarcoidosis Research has postponed its Chicago summit originally scheduled for April 3-5 to August 30 - September 1.  Here is the link. https://www.stopsarcoidosis.org/rescheduled-chicago-patient-summit/

This podcast is an introduction to the Foundation for Sarcoidosis Research, which is fighting for funding to support research to beat sarcoidosis.  I interviewed Maggie Hudson, who is the communications manager for the Foundation.  She is extremely knowledgeable about the various aspects of the fight against the disease.  I hope you will enjoy learning more about FSR and the potential for an eventual cure.

Please remember the Sarc Fighter podcast is uploaded every other Monday at 6 a.m.   But, during the month of April, sarcoidosis awareness month, I will be releasing an episode EVERY Monday profiling four people who are fighting sarc every day.

Here is the link to the Foundation for Sarcoidosis Research: https://www.stopsarcoidosis.org/

World Association of Sarcoidosis and Other Granulomatous Disorders https://www.wasog.org/

More on Maggie Hudson: https://www.stopsarcoidosis.org/about/staff/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  sarcfighter@gmail.com

Sarc Fighter Facebook Page  https://www.facebook.com/SarcFighter/

Are you a cyclist?  

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

March 9, 2020

Episode 3 Patient Frank Rivera bares his soul.

Sarcoidosis patient Frank Rivera has one of the most severe cases of Sarc you can imagine.  "It's easier to tell you where I don't have it, than where I do," Frank told me during our talk on the podcast.  Frank was one a runner.  A good one, turning a marathon time of 2:30 and running under a 4-minute mile.  Now, he walks with a cane.  Despite the setbacks, Frank Rivera is one of the loudest voices in the fight against Sarcoidosis.  He organizes a walk on Long Island.  He's just published a book.  He even worked to get a billboard in New York's Times Square to fight Sarcoidosis.  I hope you enjoy our talk recorded in February of 2020 at Chevy Chase, Maryland during a meeting of advocates for the Foundation for Sarcoidosis Research.

Frank's Walk https://www.ticketor.com/sarcoidosisofli/event/6th-annual-sarcoidosis-of-long-island-awareness-walk-187357

Frank's website, Sarcoidosis of Long Island  https://www.sarcoidosisofli.org/

Buy Frank's book:  https://www.amazon.com/Walking-Silent-Pain-Autobiography-Resilience/dp/B084QM4ZFV/ref=sr_1_1?crid=H7OUADZISLMH&keywords=walking+in+silent+pain&qid=1581713780&s=books&sprefix=walking+in+silent+pain%2Cstripbooks%2C160&sr=1-1&pldnSite=1

Other mentions from the Podcast

Cycling with Sarcoidosis http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

FSR Summits 2020  https://www.stopsarcoidosis.org/patient-summits/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR  https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me  sarcfighter@gmail.com

Sarc Fighter Facebook Page  https://www.facebook.com/SarcFighter/

 

 

 

February 21, 2020

Episode 2 All About Sarcoidois with Dr. Simon Hart

In this Episode of the Sarc Fighter Podcast, I interview Dr. Simon Hart of the Hull York Medical School in the U.K. Dr, Hart is one of the world's leading authorities on sarcoidosis.  I asked him about the troubling aspects of sarcoidosis -- like, why can't we find a cause or a cure, and why is it so difficult to control.

 

More About Dr. Simon Hart  https://www.hyms.ac.uk/about/people/simon-hart

My Sarcoidosis story on WSLS 10 TV  https://www.youtube.com/watch?v=qyT3OfR60B4

The Foundation for Sarcoidosis Research  https://www.stopsarcoidosis.org/

FSR summits 2020  https://www.stopsarcoidosis.org/patient-summits/

My blog about Cycling with Sarcoidosis  http://carlinthecyclist.com/category/cycling-with-sarcoidosis/

 

February 8, 2020

Episode 1 My Sarcoidosis Story

John Carlin launches the Sarc Fighter podcast, by sharing the story of how sarcoidosis has taken over his life -- and how he is fighting back.  From the drugs that worked to those that didn't  - and the ones that made his life miserable, John shares the trials and tribulations that people with sarcoidosis face every day.

John's bike blog including a series of posts on cycling with sarcoidosis.  www.carlinthecyclist.com

The Foundation for Saroidosis Research https://www.stopsarcoidosis.org/

Contribute to John's KISS account -- Kick in to Stop Sarcoidosis https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis

Upcoming Summits for the Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/patient-summits/

January 19, 2020

Sarc Fighter Trailer

This is the trailer for the Sarc Fighter podcast

January 16, 2020

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